Where Has Hadena Gone?

I survived my book talk on Tuesday.  There were a few moments of doubt on my part, as I slugged down several extra strength Tylenol so I could sit comfortably.  Aside from that two hours, I’ve pretty much been doing as little as possible.

First, let me explain the process, because most people are thinking they are like shots.  They really aren’t.  They mark the spots with pen where they are going to insert the needles.  Then they insert all the needles… all of them.  This time it was 18.  The doctor then moves from needle to needle with the medicine.  The syringe is screwed onto the needle, the medicine injected, the syringe unscrewed, and onto the next.  This is followed by a repeat of that same procedure on all the needles.  For 45 minutes, I laid on my stomach over an X-Ray machine that helped them guide the needles in and avoid bone, as they moved to each needle, injected, and etc.

Monday, I got injections for the leg pain that I suffer due to nerve irritation going through my SI joints.  The injections do help.  This time though, they made me sick.  Monday I ran a fever, was nauseated, slept most of the day, and hurt like you would not believe.

They hit my sciatic nerve on both sides this time.  That was interesting.  When the needle was inserted, my leg drew up all on its own and I couldn’t do anything about it.  So the injection went into a tensed leg on each side and felt like molten lava.

Those sites are still bothering me even today.  Tylenol is helping, but not much.  I can’t take NSAIDS, which sucks, because I think ibuprofen or ketorolac would help a lot more…

As bad as the sciatic injections were though, there was one worse.  There is a large nerve that runs through the pelvis from front to back.  To get to it, they stuck a needle in the crack of my ass. Holy shit.  It was unexpected and it hurt like hell.  No molten lava sensations, which was nice, but it feels like they tore everything down there.

It did teach me a few things:

  • My doctor has a sense of humor and I did tell him I was going to kill him in a book, which he was fine with.  It’s nice to have a doctor with a sense of humor.  I try very hard to be stoic when having any sort of procedure done and that means cracking jokes.  Having a doctor that jokes back is really nice.  I did yelp though when they did the three big ones.  However, I still got a pat on the back by the nurses and the doctor who said most people cry or scream during the procedures, so my tiny yelps were easy to deal with.
  • Injecting into large nerves hurts more than joints and smaller nerves.  And the recovery time seems to be longer.  I’m still having trouble getting comfortable when I sleep and standing/sitting is awful.  Bending and lifting is pretty bad.  I keep walking and doing what I’m supposed to be doing, but the healing is not going nearly as fast as the first time and it’s only those three injection sites that are still bothering me.
  • Whatever the hell is wrong with me responds to large doses of gabapentin.  I’ve mentioned before that sometimes I wake up and I just feel broken in half or the simple act of getting out of bed makes everything hurt. Literally, getting out of bed can be painful in my arms, back, feet, ears, it’s weird to have that happen.  However, after getting the injections, I stopped taking the gabapentin and found those familiar aches and pains coming back.  So today, I took a few that I had and found that tonight, I’m not having the pain I normally have that I just attribute to getting older.  I’m beginning to believe my doctor might be correct and a rheumatologist is in order.  This was further confirmed by X-Rays of my hands recently that showed no arthritis in them and yet, they feel and act like I have arthritis.  I also have issues with my body interpreting being cold as being in pain.  The gabapentin seems to have helped that.  My inflammation levels fluctuate a bit, sometimes they get high, but usually they are just above the normal range… So I don’t have a clue what’s going on and the gabapentin helping those pains is strange.
  • The only time Tramadol actually relieves my pain is when I mix it with gabapentin.  I don’t know exactly what the interaction between those two drugs are, but together, I can be completely pain free for a few hours.  The gabapentin also seems to reverse the side effects of the Tramadol.  Since it is a mild narcotic that also works by adjusting serotonin levels, I have some problems taking it (mainly I lose the ability to sleep when my serotonin levels are messed with – this is why my anxiety is treated with benzodiazepines and not antidepressants).  Taking the two together, makes me pain free and sleepy, which is something I desperately need right now.  Before the injections, I wasn’t sleeping because of the pain in my legs.  Now the pain in my legs is calm enough for me to sleep, but the injection sites are keeping me awake.
  • I am still in the accepting phase.  The injections are here for the long haul.  I’m going to continue to need them for a long time.  My other option is cutting nerves and that doesn’t sound fun to me.  I’m hopeful that in the future, I will learn to deal with them.  I have some pretty strong determination in that department.  However, when they wear off and the pain comes back, I also find myself depressed and wondering how long I can take it.  I knew I was going to have arthritis pain in my hips and the pseudo-arthritic condition in my hands.  I did not expect the chronic pain that I now have in my legs or the rest of my body.  I am looking forward to being able to take Lola the Destroyer back to the park for walks again.  I miss those.  It’s bonding time for us and she enjoys it and as long as the injections are working, it doesn’t cause me more pain.  It actually lifts my mood tremendously.
  • Finally, this means I haven’t been working as much as I’d like.  I need about 10 chapters on Flawless Dreams and this week has mostly been a bust in the writing department.  I’m hoping by Friday the injection sites are no longer bothering me and I can actually sit down long enough to write and stay focused.

Ok, so that’s me this week.  I just have to remind myself that it gets better… the leg pain is minimal and the injection sites will heal soon.

4 thoughts on “Where Has Hadena Gone?

  1. If definitely think you need to go to a Rheumatologist. (Try to find one that actually accepts the fairly new decision that Fibromyalgia is a medical condition not a mental one, that way he/she can look for both RA & Fibromyalgia. ) I feel your pain – literally. I have fibromyalgia and RA, along with 2 other autoimmune diseases. They’ve had to start putting me to sleep to do my shots, I was fine for a long time, but now if I’m not put to sleep, I almost pass out when they get me up. Another thing you may want to look into is the nerve implant. I’ve been found to be a good candidate for it and I’m considering it. Good luck!

    Liked by 1 person

  2. How to really kill the Doc and make him go ohhhch when he reads it.. ready .. set him up as you were,, then OH opps we are out of the gauge needle YOU use,, but I found a Nice replacement.. It’s normally used to go into bone and extract marrow or insert fluids.. then I have this one.. It’s like a meat thermometer they stick it in joints to see if you have pressure causing compartmental syndrome.. and since I am not that strong see this padded hammer it will help me put things in the ight spot.. and going thru the pelvis, we need to be sure we hit all the important spots like.. the rectal cavity, the bladder, and then we need to hold mr winkie straight so we go right up him to the tippy top so ohh you moved now look at that hole you ripped in Mr winki that will hurt for a while a year or two and you should be ble to use viagra… oh now that we are thru here we thread this thru the tip of the needle I know it LOOKS like a tampon but it’s really a surgical sponge they use em all the time for broken noses.. and we’ll pull everything out the way it went in except for that detour that You caused.. wont take long we have this winching system that helps with patients traction it’s full of 25 pounds of sand oh I was supposed to lower it I didn’t mean to drop it like that.. but it’s out don’t you feel better?? have a great day oh he fell asleep.. oh Nurse Missy, oh you forgot the epidural? oh well he didn’t need it see his monitor came back from flat line after I hit it a few times.. DO you have that potassium IV I know that burns so while he’s out would be a nice time to run it I know see that hole in his winki, yea put it in thru there.. .. He’ll be feeling better in no time…

    see being a nurse gives you so many ideas that you think about while you do it the by the book method..
    BTW they did use the pressure monitor on my 9 yr old son’s ankle after a snake bite.. and they heard him via the elevator on the helipad true story.. maybe that’s why at 34 he still doesn’t like needles.. hmmm

    print this and send it to your Doc and tell him you have nurses across America willing to help you give to him as he does to our favorite author..

    Liked by 1 person

  3. I don’t talk about it much but I have been getting epidural injections​.for awhile and a few times a vein or artery has been in the way and they really had to dig around or at least that’s what it felt like to me and I told the doctor that and he is actually really had to move and change the needle which has caused a lot of pain and recovery time and I take gabapentin also and it does help what they offer itis in the joints with other drugs my deal on the sleeping thing for you was Ice and I use one of those small little lady recliners that’s more firm and I kind of recline myself back to get a different angle and I use my computer with a lap a pillow like more on my chest to give myself a different angle so the pressure is on my body or a different area just an idea so what I do I can’t always work in what’s in a conventional sitting way for other people just thought pillows in a recliner a small women’s firm recliner not one of those gigantic men’s recliner. hope you feel better soon shay out

    Liked by 1 person

    1. I can’t use ice… as I said, it might be time to talk to a rheumatologist. My body interprets “cold” as “pain.” The leg pain I have been experiencing the last few years is how my feet, hands, arms, etc feel when they get cold. But my lower legs became a permanent pain and the others are just once in a while. So I’m treating one, but not the others. Since I can’t stay on the injections indefinitely, I think I need to find out what is actually going on with my nervous system.


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s